Each year we donate our time to several organizations in the Boston community. This year we were glad to collaborate with a very special organization that supports children and families with Duchenne Muscular Dystrophy (DMD).
We have partnered with JB’s Keys for several years and were very happy to create this video for their 2022 fundraiser. Being a part of these boy’s lives brightened our day (and the video too)! JB’s Keys gives families the opportunity to explore without the need for financial hardships. Programs include family assistance, educational scholarships, adaptive sailing and skiing, and overall funding to help children and young adults thrive.
This year we captured interviews of parents and their children in the studio. Watch more to see what amazing things this organization has accomplished and how they continue to change families with DMD lives.
JB's Keys to DMD's mission is to continue to educate and raise awareness of the disease; fund research; improve care and create quality of life experiences for our boys and their families.
More about DMD:
Duchenne Muscular Dystrophy is the most common form, of the nine types, of muscular dystrophy; a progressive muscle disorder which causes weakness and loss or atrophy of the skeletal, cardiac, and pulmonary muscles. Duchenne is caused by the lack of dystrophin, a protein that keeps muscles healthy and protects, and aids in repair, from injury.
Predominantly a male genetic disorder that affects approximately 20,000 children worldwide, or one in every 5,000 boys, each year. A boy inherits DMD when he receives a broken X-chromosome, that fails to make the protein dystrophin. About 1/3 of boys with DMD come from a family without any history of the disease.
Boys with DMD show signs of muscle weakness as early as age 3; lose the ability to walk between the ages of 8 and 12; feel the effects of heart and respiratory muscles by early teens; and have a life expectancy of early 20s.
To learn more about JB’s Keys to DMD and ways to donate to this amazing organization, please visit their website https://www.jbskeys.org/
Photographer Tim Llewellyn
Producer Jenna Teeson/ Teeson Reps
Assistant Jamie Llewellyn
Hair/MU Min-Ah Campos/Anchor Artists